Information leaflets on some genetic disorders

• Genetic Clinic Information Leaflet
• Genetic Factors in Cleft and Cleft Palate
• Hereditary Angioedema-Emergency treatment protocol
• Myotonic Dystrohy and how it affects your health
• MADD Protocol (needs updating)
• Guildlines for Tuberous Sclerosis
• Guildlines for Hypertrophic Cardiomyopathy (HCM)
• Cancer Guidelines for Patients (needs to be updated)
• Information Leaflet for Familial Arrhythmia clinic

Links to related sites and some support organisation

1. Alstrom Syndrome
   http://www.alstrom.org.uk/
2. Antenatal Results and choices
   http://www.arc-uk.org/
3. British Society for Human Genetics-BSHG
   http://www.bshg.org.uk/
4. Contact a Family?Patterns of inheritance
   http://www.cafamily.org.uk/inherita.html
5. Cystic Fibrosis Trust
   http://www.cftrust.org.uk/
6. Down?s Syndrome Scotland
   http://www.downs-syndrome.org.uk/
7. Gauchers Association
   http://www.gaucher.org.uk/
8. Genetic Interest Group
   http://www.gig.org.uk/
9. Genetics and Cancer---Cancerbackup
   http://www.macmillan.org.uk/Home.aspx
10. Huntington?s Disease Association
    http://www.hda.org.uk/
11. Laurence-Moon-Bardet-Biedl Society
    http://www.lmbbs.org.uk/
12. Marfan Association
    http://www.marfan-association.org.uk/
13. Muscular Dystrophy Campaign
    http://www.muscular-dystrophy.org/
14. Polyposis Registry (UK)
    http://www.polyposisregistry.org.uk/
15. Prader-Willi Syndrome Association (UK)
    http://pwsa.co.uk/
16. Restricted Growth Associationhttp://www.restrictedgrowth.co.uk/
17. SCOTGEN
    www.scotgen.org.uk 
18. S.O.F.T UK
    http://www.soft.org.uk/
19. SPARKS
    https://www.sparks.org.uk/NetCommunity/SSLPage.aspx?pid=191
20. Stickler Syndrome Support Group (UK)
    http://www.stickler.org.uk/
21. Tuberous Sclerosis Association (UK)
    http://www.tuberous-sclerosis.org/support/professionals
22. Worster-Drought Syndrome Support Group(UK)
    http://www.wdssg.org.uk/
23. European Registry of Hereditary Pancreatitis and Familial Pancreatic Cancer  (EUROPAC)http://www.europac-org.eu/